We are proud to be supporting the Huntington’s Disease Association at this year’s NAFD Annual Conference, a charity very close to NAFD President, Abi Pattenden’s heart.
Imagine living with the symptoms of motor neurone disease, autism, schizophrenia, Parkinson’s and Alzheimer’s disease all rolled into one, and you’ve just imagined Huntington’s disease.
Huntington’s disease is a rare, genetic condition which causes changes in the brain affecting movement, feelings, thinking, eating and speech. The mutant ‘Huntingtin’ disease gene which causes Huntington’s contains instructions for cells to make a toxic protein. Symptoms usually starts between the ages of 3-50 years and get progressively worse over 15-20 years until the person with the disease needs full time care. It affects around 8,000 people and their families in the UK. As it is such a rare disease, people affected often feel isolated and struggle to get the support and care they need.
The Huntington’s Disease Association (HDA) is the only charity in England and Wales dedicated to supporting people affected in any way by Huntington’s disease. The charity works hard to improve the quality of care, provide training, information and advice to people with Huntington’s disease and their families and the professionals that look after them, raise awareness to increase understanding of this little-known condition and promote research towards better treatments and the ultimate aim of a future without Huntington’s.
During the NAFD Grand Banquet and Ball there will be a team of NAFD supporters on hand collecting donations and names to be entered into a prize drawn so please be sure to being your wallets to help us raise money for this unique and well-deserved charity.
Guildford Harbour Hotel
3 Alexandra Terrace, High
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